Thursday, January 17, 2013

Praying for Evan

Please pray for Evan, his Mom and sisters.  Evan has Junctional EB, a different form than AJ and also very serious.

Here is a picture of him this morning.

Evan had symptoms of an airway that was scarring shut from EB. He went into the hospital today to have it checked. Evan's Mom was struggling with the decision to do an elective tracheotomy.  She shared with me yesterday that she was concerned about the loss of his speech if he had a trach. She shared that Even loves to sing and talk. If his upper airway closed and he had a tracheotomy  he would have no way to get air over his vocal cords and he would lose the ability to speak or sing.

I am so thankful that Evan is still here with his family. Before the doctors even got started into the procedure today, his airway closed completely and they did an emergency tracheotomy to save his life. His airway could have closed before they arrived at the hospital. Instead it happened in the operating room.

Evan needs our prayers.  Prayers to handle the many changes he will need to adjust to.  I can't imagine waking up with the inability to speak; especially if you are only four years old.  Pray for peace, healing and an that an alternative form of communication be found for him quickly.

Thank you so much for following our blog and for praying for these little ones with EB.


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