I would like to share with you my thoughts and the meditations of my heart that originate from God's word.
God has a plan for those that are born with a disability and those that become disabled in this life. God's word tells me that God plans for and allows disabilities.
Disability brings intense suffering. It can be hard to understand how God can design something that brings such suffering. I do know that God has an understanding and mind that is not like ours. We are finite, he is infinite in his understanding.
Epidermolysis Bullosa is just one of many physical and mental conditions that results in intense suffering. Why would God do this? Why would he allow such suffering? We can get some insight from the following scriptures.
for my power is made perfect in weakness.