Monday, December 16, 2013

There Is No Pain In Heaven

We just returned home from the hospital and we are so thankful to be home. AJ developed another serious infection on his foot (He had the same infection a month ago; different foot this time).  He was in so much pain that his body shook and he kept screaming.  He had a temp, had not walked in 24 hours and I knew the wound was not going to heal without help.  The clinic was busy so the ER was our only choice. Thankfully it was not a long wait before they got him in.

AJ was a real trooper even when the nurse (that acted like she knew all about EB) tore the skin off his foot. You can imagine how much pain he was in.  He is feeling better now with some good pain meds.  The antibiotic should do its job in 24 hours, otherwise we are inpatient.  AJ was so sweet when we left, he told the nurse that he wanted to go to heaven; he told her there is no pain there.  The nurse looked pretty uncomfortable with that statement.  We asked him to stick around a while more and that he would be feeling better soon.

I'm so glad heaven is real and AJ knows that someday Jesus will take him there.  We may be home but it's only our temporary home.  Heaven is our real home and it's good to remember that.

We appreciate your prayers for AJ, that this infection would clear quickly.

Barbara and AJ

Sunday, December 15, 2013

Happy Birthday AJ!

Today we celebrated AJ's sixth birthday.  Oh how blessed we are; that God has given us these years with AJ.  We pray that God will give AJ many more years but we know that life with EB is full of unknowns (hey we know life without EB is filled with enough unknowns).  Today was hard for AJ in that he had much more pain than usual.  I'm not sure why it's worse today but it just is.  AJ did enjoy his Angry Bird cake and his friend, Briella, and her parents celebrated with us.

As I thank God for AJ's life tonight, I also cry for a friend, Steve Stearns.  Steve and his wife Tammi were friends that we met through our EB family.  Tammy passed away this past year, suddenly and without warning.  She left behind her preschool daughter, Chloe, and baby Liam, that was born with EB.  Tonight little Liam passed away. Steve and Chloe are left behind with Mom and baby brother in heaven.  My heart breaks for them.  You can read more about Liam and his family here: Liam's Lambs

Life is unpredictable but God is our sure and solid rock.  How thankful I am that we have Him to cling to. Please pray for Steve and his daughter Chloe as they mourn the loss of their little Liam.