Saturday, February 4, 2012

Four Years Ago Tonight

Four Years ago tonight we brought our little AJ home.  I remember leaving Minnesota in the middle of winter and heading down to Texas.  My first stop was the Neonatal Intensive Care Unit.  I will never forget walking in and seeing my little guy, for the first time, rocking in his swing.  He was so precious. It was so odd to see the other families all huddled around their little babies and there sat AJ, swinging silently, alone in the silence.  We learned that the families in the NICU had come together to purchase a musical mobile to place above AJ's crib.  They recognized that he had no visitors and he did not even have a name; they called him, "Baby Boy".  I am thankful for those that watched over AJ for the six weeks before we arrived.  They showed him the love of God through their actions.

The lights  in the NICU were always kept low in the unit so there was no sense of time (day or night).  Time seemed to hold still while I was there.  AJ's little eyes were so huge as they looked at me for the first time.

His body was wrapped in gauze and a feeding tube was taped to his face.  He was covered in vaseline - even his face.  He looked very content and I hated to disturb him but I couldn't wait to pick him up and hold him.  I could hardly believe how blessed we were;  He was ours.

I spent three days in the NICU taking a crash course on how to care for all of his special needs.  I had the privilege of meeting his birth mother while I was there.  Together we visited and rocked the little man.   Together we chose his name; Alexander James Fischer.  On Superbowl Sunday AJ and I flew home to Minnesota.  Everyone was so excited to meet him.

It was then that our adventure with AJ and EB really began. Not only have we been blessed with AJ but we have been blessed to meet so many friends in the EB community.  We have many things to be thankful for.  Thank you Lord for blessing our family with AJ!  We would all agree that our lives have been changed for the better.

Psalm 9:1-2 (English Standard Version)

I will give thanks to the Lord with my whole heart;
I will recount all of your wonderful deeds.
I will be glad and exult in you;
I will sing praise to your name, O Most High. 

I hope you enjoyed the pictures. Thanks for following us on our journey.

Happy Gotcha Day AJ!



  1. Dear Barbara: Thank you for the update. Happy Gotcha day AJ. God Bless you for all you do for AJ and your other children. Usually a family has EB thrust on them when their child is born with this horrible disease. You on the other hand had a choice to walk away or raise this very precious boy with this horrible disease. Thank God there are families like yours to save these poor babies. Give that precious son of yours a big hug for me. Take care. Love and Peace Leah and Tabby's Nana

  2. WOW! what a beautiful miracle! reading that really touched my heart. you are a wonderfull person! and AJ is such a handsome boy!