Some of you know that I am a Craigslist shopper. We went in search of a bed and found a fire truck toddler bed.
A special thanks to KJ who picked up the bed for us. It gave us a good excuse to travel to the Twin Cities for a visit. The girls, AJ and I made it a day trip and took KJ along to the Mall of America. We had lots of fun as we spent most of the time on rides. (For those of you that don't know me - I hate shopping more than anything).
I found AJ his summer shoes. We knew that many kids with EB wear Crocs. Since AJ's feet were getting too hot in slippers I ordered a pair online. He loves them. I did have to stretch them out some - I used a hair dryer to heat the material and then stretched it. Considering he has his feet pretty heavily wrapped, I'm so glad they fit.
Thanks to all of those that called or emailed about RR. We are working on finding a permanent placement for him. Right now a longer term hospital setting is being considered - just to get him better stabilized. At this point we just keep moving forward, waiting for his care team to make a decision.