Monday, February 28, 2011

He's Growing Up

Aj learned a new skill - crib jumping!  It's been easier to just keep him in a crib all this time as he has been connected to an airway monitor and a feeding pump - at least until - he learned to jump over the side while still connected to his pump.  I really don't want an emergency trip to repair a hole in his stomach or to have the tube replaced so it was time to find him a bed.

Some of you know that I am a Craigslist shopper.  We went in search of a bed and found a fire truck toddler bed.

I didn't even know they made cute beds like this.  Now to take down the zoo theme on the walls!  Anyone in need of a nursery zoo theme?

A special thanks to KJ who picked up the bed for us.   It gave us a good excuse to travel to the Twin Cities for a visit.  The girls, AJ and I made it a day trip and took KJ along to the Mall of America.  We had lots of fun as we spent most of the time on rides.  (For those of you that don't know me - I hate shopping more than anything).

I found AJ his summer shoes.  We knew that many kids with EB wear Crocs.  Since AJ's feet were getting too hot in slippers I ordered a pair online.  He loves them.  I did have to stretch them out some - I used a hair dryer to heat the material and then stretched it.  Considering he has his feet pretty heavily wrapped, I'm so glad they fit.
They look cuter on his feet than in this picture. He adjusted to them quickly but does seem to trip some so it will take some getting used to.  I don't think it's that they are too big but instead they seem to stick to the kitchen floor (yes, my floor is clean).

Thanks to all of those that called or emailed about RR.  We are working on finding a permanent placement for him. Right now a longer term hospital setting is being considered - just to get him better stabilized.  At this point we just keep moving forward, waiting for his care team to make a decision.

2 Peter 1:3 (New International Reader's Version)
God's power has given us everything we need to lead a godly life.  All of that has come to us because we know the One who chose us.  He chose us because of his own glory and goodness. 

Have a blessed week.  I'm hoping for Sunshine.


1 comment:

  1. I love AJ's new bed!

    We had that same jungle theme when Kenya was a baby.

    If you don't mind could you please email me I would love to talk to you more. We are the ones wanting to adopt the baby with EB.