RR was hospitalized today. His physical symptoms are too serious for his doctors to ignore any longer. He has diabetes insipidus (a kidney problem) and a tumor on his pituitary gland. We are not sure what problem is causing his symptoms, or if both are. Add to that some pretty hefty psychiatric meds and it's a recipe for more questions without answers. The doctors are going to take away all of his medications and start over. The problem with doing that, is that he becomes violent and psychotic without his meds. RR remembers well those difficult days and is concerned about what the future days will bring. He is in a good place and they are working hard to meet his physical and psychological needs. It appears that he may be inpatient for a while. This will not be a quick fix but it would be a blessing to have some answers.
AJ's esophageal plan has changed back and forth. This past week Mayo told me that they wanted AJ to fly to Cincinnati as his airway issues complicate the procedure. (Cincinnati is where the large EB clinic is located) I started working on the details when his GI doctor called and said they had a meeting of everyone involved and worked out the problems. They are confident they can safely do the procedure here at Mayo and he is scheduled to be admitted as an inpatient on February 3rd. This is good news for which we are thankful.
Our home is extra busy as my sister and her two boys are staying with us for a few weeks. AJ is having lots and lots of fun. KJ was here for a week and she always makes AJ's life a little crazy :)
Thanks for your prayers. RR really needs them. It's hard to start doing major medication changes but his body needs help and the hospital is the best place for him right now.
My prayer for RR is taken from the verses below; Lord it is good to sing your praises, how pleasant and fitting to praise you! Heal RR's heart and bind up his wounds.