The lights in the NICU were always kept low in the unit so there was no sense of time (day or night). Time seemed to hold still while I was there. AJ's little eyes were so huge as they looked at me for the first time.
I spent three days in the NICU taking a crash course on how to care for all of his special needs. I had the privilege of meeting his birth mother while I was there. Together we visited and rocked the little man. Together we chose his name; Alexander James Fischer. On Superbowl Sunday AJ and I flew home to Minnesota. Everyone was so excited to meet him.
It was then that our adventure with AJ and EB really began. Not only have we been blessed with AJ but we have been blessed to meet so many friends in the EB community. We have many things to be thankful for. Thank you Lord for blessing our family with AJ! We would all agree that our lives have been changed for the better.
Psalm 9:1-2 (English Standard Version)
I will give thanks to the Lord with my whole heart;
I will recount all of your wonderful deeds.
I will be glad and exult in you;
I will sing praise to your name, O Most High.
I hope you enjoyed the pictures. Thanks for following us on our journey.
Happy Gotcha Day AJ!
Barbara
Dear Barbara: Thank you for the update. Happy Gotcha day AJ. God Bless you for all you do for AJ and your other children. Usually a family has EB thrust on them when their child is born with this horrible disease. You on the other hand had a choice to walk away or raise this very precious boy with this horrible disease. Thank God there are families like yours to save these poor babies. Give that precious son of yours a big hug for me. Take care. Love and Peace Leah and Tabby's Nana
ReplyDeleteWOW! what a beautiful miracle! reading that really touched my heart. you are a wonderfull person! and AJ is such a handsome boy!
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