Through The Eyes of Jesus: Sanctity of Human Life

Sunday, January 22, 2012

Sanctity of Human Life

Lord, today is Sanctity of Human Life Sunday and we have so much to be thankful for.

Thank you Lord for creating AJ just as he is; please help others to recognize the beauty of your handiwork.

Thank you for surrounding his birth mother with your love and for helping her choose life when the man that was AJ’s father only cared about himself and used her; throwing her away as a piece of trash.

Thank you for giving her the strength and wisdom to carry her pregnancy to term even when everyone around her loudly proclaimed that no woman should have to carry a child conceived by rape, to term.

Thank you for bringing people into her life that prayed and provided for her during those very difficult times.

Thank you for allowing AJ to be born in a hospital that was familiar with EB and was medically prepared to treat his unexpected physical condition.

Thank you for giving the medical staff the eyes to see a beautiful baby boy rather than an unnamed baby that was born disfigured and disabled.

Thank you for blessing our lives with AJ. Thank you for your protection when so many things could have gone wrong; AJ’s life could have so easily been ended.

You Lord, have taken a human life, that many have little value for, and turned it into a joyful treasure.

We treasure your creation and give you the glory for your wonderful work.

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What is Recessive Dystrophic Epidermolysis Bullosa?

It is a rare genetic disorder that causes AJ's skin to blister and tear with the slightest friction or contact. He can have severe blistering anywhere on his skin. Internally his mucus membranes and organs are affected. Due to blisters in his mouth and throat, he eats very little by mouth and receives his primary nutrition through a gastrostomy-jejunostomy tube (G-J) that is placed in his stomach and small intestine. He struggles with breathing at times as blisters form in his mouth, throat and upper airway. There is no cure for EB. AJ will live with constant pain and scarring. With each tear to his skin, the skin scars and eventually limits his movement. His fingers and hands will begin to fuse and curl together. The only treatment for EB is daily wound care and bandaging. Each day we unwrap his body, bathe him, treat his open wounds and then wrap him up all over again. AJ has many medical providers that help us with his care. He has a power chair that he uses in the community to reduce the friction on his feet. He also takes many medications to reduce the acid reflux that damages his esophagus and to help with the intense itching that EB creates. Children that do not succumb to infection, malnutrition or airway complications develop an aggressive form of skin cancer in their teen years. Children with AJ’s disorder are often referred to as, “Butterfly Children” as their skin is as fragile as a butterfly’s wing.