Through The Eyes of Jesus: Please pray for Melanie

Wednesday, March 16, 2011

Please pray for Melanie

Please pray for Melanie and her family. She is very, very sick and she and her family need our prayers. Melanie is a friend of AJ's from our church. She has suffered from a serious physical disability since birth but through it all she has loved Jesus with a sweet and gentle heart. Right now she is in the PICU and and you can read about her journey here Melanie

Barbara

I've been singing this song and praying for her this morning.

I Know Whom I Have Believed

I know not why God's wondrous grace

to me He hath made known,

Nor why, unworthy, Christ in love redeemed me for His own.

I know not how this saving faith to me He did impart,

nor how believing in His Word wrought peace within my heart.

I know not how the Spirit moves, convincing men of sin,

Revealing Jesus thro' the Word, creating faith in Him.

I know not when my Lord may come, at night or noonday fair,

Nor if I'll walk the vale with Him, or meet Him in the air.

Chorus:

But 'I know whom I have believed,

And am persuaded that He is able

To keep that which I've committed

Unto Him against that day.'

1 comment:

AnonymousApril 4, 2011 at 11:41 PM
Thank you so much for your prayers, Barbara!
Amber and Melanie
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What is Recessive Dystrophic Epidermolysis Bullosa?

It is a rare genetic disorder that causes AJ's skin to blister and tear with the slightest friction or contact. He can have severe blistering anywhere on his skin. Internally his mucus membranes and organs are affected. Due to blisters in his mouth and throat, he eats very little by mouth and receives his primary nutrition through a gastrostomy-jejunostomy tube (G-J) that is placed in his stomach and small intestine. He struggles with breathing at times as blisters form in his mouth, throat and upper airway. There is no cure for EB. AJ will live with constant pain and scarring. With each tear to his skin, the skin scars and eventually limits his movement. His fingers and hands will begin to fuse and curl together. The only treatment for EB is daily wound care and bandaging. Each day we unwrap his body, bathe him, treat his open wounds and then wrap him up all over again. AJ has many medical providers that help us with his care. He has a power chair that he uses in the community to reduce the friction on his feet. He also takes many medications to reduce the acid reflux that damages his esophagus and to help with the intense itching that EB creates. Children that do not succumb to infection, malnutrition or airway complications develop an aggressive form of skin cancer in their teen years. Children with AJ’s disorder are often referred to as, “Butterfly Children” as their skin is as fragile as a butterfly’s wing.